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Sex and the Person with an Ostomy

What is an Ostomy?

An ostomy is a surgical procedure carried out as part of the treatment of a number of diseases of the bowel or urinary tract, or to provide a method for managing incontinence, for example in the case of people with congenital disabilities such as spina bifida. A new passageway is created for the discharge of body wastes, through an opening called a stoma, onto the surface of the abdomen. A urinary ostomy may be one of several types of operation performed when there is a loss of bladder function. Urine then passes via a stoma into a bag.

How Does it Affect Sex?

There can be physical and psychological effects.

Psychological

Any procedure which makes a person look or feel different is likely to have an effect on their body image so that there are anxieties about personal attractiveness. Additional anxieties occur regarding sexual ability, the effect of the ostomy on one's partner, and the possibility of an "accident" with embarrassing consequences occurring. If severe enough these anxieties may themselves contribute to impotence.

Physical

In both men and women, if the nerves to the sex organs have been cut or damaged by surgery, feelings in the sexual areas and libido may be diminished. In women vaginal lubrication may be less, so that KY jelly may be useful to increase comfort during sexual intercourse. Women who have had a colostomy may have some scarring in the sexual area, and the vagina may be less elastic and be in a slightly different position than before.

Any problems caused by this may be overcome by the woman having intercourse in certain positions such as lying on her side or on top of her partner. Many women with ostomies have no physical problems.

In men, as in women, after the surgery the sexual area may be sore for several months. In some cases the nerves which pass to the sexual organs may have been cut or damaged and if this has happened the man may be unable to get an erection or ejaculate or the ejaculation may be retrograde which means that the semen, instead of passing out in the usual way, passes back into the bladder. In this case men are no less masculine and there is still the possibility of being fertile.

What if the man can't get an erection?

The inability to get a complete erection is often temporary in which case erections will return in a few months. Anxiety or fear of failure can itself cause impotence. Remember that there is much more to sex than intercourse. One can make love with one's hands as well as the mouth or tongue. Many people enjoy masturbation. Most women find it easier to have an orgasm using these techniques so a man who is not getting an erection can still be a wonderful lover. Some people find a lot of pleasure from using sex aids and for some men who are unable to have an erection a penile implant may be a possibility.

Some Practical Suggestions

  1. Don't be in too much of a rush. A full recovery from surgery and a return to good health is advisable before resuming normal sexual activity although a cuddle can be very comforting at any time.
  2. Partners may need to be reassured that sex will not harm the stoma, so communication between them is important. A sense of humour is also helpful in case a problem arises. If it does, try and sort it out, relax, then start again.
  3. Most people find it important that there should be no odour, so do use a bag which fits well and doesn't leak, and empty it before lovemaking. You may also wish to avoid eating or drinking anything which might cause problems for several hours before sex.
  4. The bag or stoma can be covered during sex, sexy underwear is used by lots of people to enhance their lovemaking and if the bag or stoma covering get in the way when making love in one position, try other positions which may be more comfortable.

Fertility

An ostomy usually has no effect on the fertility of women, and most women are able to have a normal pregnancy and delivery. If the woman does not want to conceive, contraceptive precautions are necessary. Men may be sterile and/or impotent although this is by no means always the case. If a man is impotent but not sterile, he may be able to father a child by AIM (artificial insemination by husband).

Useful addresses:

lleostomy Association of Great Britain and Ireland

Amblehurst House, Black Scotch Lane, Mansfield, Notts. Tel: 01623-28099

British Colostomy Association

38 Eccleston Square, London, SW1V 1PB. Tel: 0171-828-5175

ASBAH (Association for Spina Bifida and Hydrocephalus)

ASBAH House, 40 Park Road, Peterborough, PE1 2UQ. Tel: 01733-555988 Fax: 01733-555985


Any questions on personal issues like these can be asked on our Sex and Disability Helpline:

Post: Tuppy Owens, BCM Box Lovely, London WC1N 3XX

Email: Email Helpline

Phone: 0707 499 3527 : The Helpline is open weekdays 11am to 7pm

Website: www.outsiders.org.uk

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